Friday, March 31, 2023

Death With Dignity

Robert Warren died yesterday afternoon. 

He was 95, turning 96 in April. He died with dignity.

He was my friend for 29 years. He was ready to die and he welcomed it. I helped him navigate the process to make it happen.

July, 2022
In 1997 Oregon passed the Death With Dignity Act. It allows Oregon physicians to prescribe life-ending medications to patients who meet the criteria of being at the end of life, who have the cognitive capacity to understand their decision, and have the physical ability to take the dose on their own. There are waiting periods and hoops for both patients and health professionals.

In 2022 278 people chose this path and died from physician-prescribed medications.  There were 431 prescriptions written in 2022; 84 of those people died from other causes without having taken the prescription. There is no timetable or requirement to take life-ending medication.

I call the life-ending white powder "medicine." That is the term used through the hospice and "Death With Dignity" process. This wasn't "poison." Poison is a misuse of something. Drain cleaners and agricultural herbicides are poisons when ingested. The white powder that came in a pill bottle from a pharmacy was a kind of pain reliever. It worked as intended. It had the normal prescription-type words on it, along with instructions on how to mix it and consume it. The pharmacist gave a consultation. The hard part isn't for the patient, he said. For them it is quick and easy. The patient is totally unconscious and at peace. He warned that there will be some waiting, possibly hours. Death itself takes time. You need to be ready for that, he said.

Bob Warren said that 2:00 p.m. yesterday would be a good time to go. We coordinated that time so that the various hospice people could arrange their schedules to be there. Throughout the morning employees from the assisted-living facility that he lived in came to tell Bob what a joy he was to help and that he would be missed. They knew what Bob had planned. Bob greeted them warmly and thanked them. They stopped coming at 1:00 p.m. The word must have gone out: No visitors after 1:00. The facility was careful to have nothing whatever to do with the Bob's death. At 1:20 I gave Bob two anti-nausea pills. These are to make sure the life-ending medicine stayed in his stomach. 


Just before 2:00 p.m. I mixed the powder with apple juice, as instructed. The nurse and health care people stepped out of the room. They, too, are instructed not to participate in the act of Bob drinking the mixture. Two people from Oregon's Death With Dignity nonprofit asked him if he understood that he would be taking a life-ending drug. He said he certainly did. He sat on the edge of his bed, took the glass, drank it down. We sat there together, my arm around his shoulder. In two minutes he said he was sleepy and was ready to lie back. He sighed and closed his eyes. 
The room filled back up with hospice nurses, who helped to scoot him back onto the bed with his head on a pillow. The nurses and I held his hand and talked to him as he lay there quietly, sighing from time to time, unconscious and otherwise motionless. During that hour and 40 minutes the nurses monitored his heartbeat and breathing until his heart stopped.

Bob Warren made a living as a musician in Los Angeles. He was alert and opinionated to the end. We played Wordle together every day. He got yesterday morning's word, BREAD, in three guesses. He knew exactly what he was doing yesterday. He had made a decision. He had had enough. He knew the lyrics to hundreds of songs that were popular in the 1930s, 1940's, and 1950's. He recited the lyrics to a song made popular by Rosemary Clooney, "I Stayed Too Long at the Fair."

The merry-go-round is beginning to slow now
Have I stayed too long at the fair?
The music has stopped and the children must go now
Have I stayed too long at the fair?

He was ready to leave the fair.

The Oregon Health Authority keeps track of this program, including questions about why people choose to end their lives.

As in previous years, the three most frequently reported end-of-life concerns were decreasing ability to participate in activities that made life enjoyable (89%), loss of autonomy (86%), and loss of dignity (62%).

That was Bob. He had become essentially immobile. He needed help to get to the bathroom. He couldn't see well enough to read. He couldn't get to his computer or navigate its keyboard. People brought him food and he said he could barely taste anything. He wasn't suffering in agony, but he was generally uncomfortable. He was getting weaker. He knew what he had to look forward to was more of the same, only worse. Time to go now, while I still can make my own decisions and die with my dignity intact, he said. 



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15 comments:

Anonymous said...

What a sweet tribute to your friend. Blessings on his crossing over.

Rick Millward said...

There is something profound and poetic in your post today.

With all the drama and conflict surrounding the beginning of life, it's fitting that we take a moment to consider a live's ending. That we have found the wisdom to provide for a person to make that decision for themselves gives meaning right up to that last moment. There is hope in that, along with the grief.

Ed Cooper said...

Thank you, Peter for telling your friends and your own story about what can be a beautiful moment in a person's journey and too often is not. I wish everyone could have such a peaceful passing into the next stage if yheir journey.

Anonymous said...

Thank you for sharing your experience, Peter. A person should be as fortunate as Bob to have a friend like you to honor and support their choices at the end of their life. You did an awesome job. And, I’m sorry for the loss of your beloved friend.

Thanks, too, for acknowledging the support that you had from hospice and from me and a colleague as volunteers with End of Life Choices Oregon, EOLCOR (Eolcoregon.org). EOLCOR is a non-profit, volunteer organization who’s sole role is to support people as we did Bob and Peter. We and Death with Dignity (a national advocacy organization to protect and expand access to end of life choice) along with several other organizations are part of the broader effort doing this important work.

Laurel Miller

Erin said...

Peter- much respect to you and Bob. He was lucky to have you by his side almost daily. I'm sharing your blog with all the staff. We will miss Bob. We are grateful he could leave this Earth on his terms.

Michael Trigoboff said...

My father-in-law died peacefully at the age of 80 in his sleep. One of his buddies said to me, “George is going to be the envy of all his friends.“

I am reminded of the character from Catch-22, who was determined to live forever or die in the attempt. It sounds like your friend took a heroic stab at it and bailed out at just the right time.

He was blessed to have a friend like you.

Malcolm said...

Peter, my heart goes out to you and Mr. Warren. I’m so happy he could exit this existence gracefully, and with a good friend at his side.

Do you, or someone else, have any idea about 1. What is needed to prove a person is near the end of his life? And 2. Why can’t a person who’s NOT near the end of his life choose Death With Dignity? Some people experience unbearable mental pain, but don’t qualify for this type of relief.

Michael Trigoboff said...

Malcolm,

If someone wants/needs to get out of this life and society refuses to help, there’s a good way to do it yourself.

Sally said...

Very nice post, Peter. Thanks for the details.

Malcolm, two doctors are required to attest that the person has a life expectancy of less than six months, along with being mentally sound and under no financial or other duress. It’s a very restrictive act, which can be a bit of a hardship but has kept complaints down to about zero.

As far as the state lending its imprimatur to anyone, including the miserable or mentally ill, for voluntary early death, I’m not sure you’d really want to live in a world where this was institutionalized and sanctioned by the state.

Anonymous said...

I am happy for your friend and good for you for helping him. His life, his death, his choice, not hurting anyone else. No need to be totally miserable until the bitter end. That is inhumane.

I support everyone's right to die whenever they want. It should be peaceful and painless for everyone. It is no one else's business.

Ed Cooper said...

Sally makes a very good point in the second paragraph; I fully support Oregons Death with Dignity laws, but there are many very thorny and difficult questions to be resolved before the State begins recommending voluntary suicide for people in mental duress or the throes iof mental illness.

Malcolm said...

Thanks, Michael. I’m familiar with the suicide bag, and various other methods, having had discussions with people seeking to end this existence. What some have told me is that, according to their religion, suicide is a major sin. And anyone who helps them end their life will almost surely be charged with manslaughter, if not murder. That’s why I believe Oregon should expand Death With Dignity, as has happened in at least a few countries already.

Malcolm said...

Thanks for your views, Sally. Regardless of societal approval, I know people who-and I agree-think they are being discriminated against, simply because they are mentally ill, rather than physically ill.

Malcolm said...

Thanks, Ed. Yes, this requires lots of deep thinking. However, I’m unaware of any suggestions that the state “recommend” voluntary suicide.

Ed Cooper said...

Malcolm: After re reading this entire Post again, and my comments , I realize I missed spoke by using "recommended" instead of "sanctioned".